This is an outstanding opportunity to join the three-person Development, Engagement, and Communications (DEC) team at PWSA (USA), providing support and services to enhance the quality of life of those affected by Prader-Willi syndrome (PWS).
PWS is a complex genetic disorder affecting appetite, growth, metabolism, cognitive function and behavior. PWSA (USA) is a national association working to save and transform the lives of those affected by PWS through awareness, family support, research, education, and advocacy.
The DEC team of professionals works with the other 12 PWSA (USA) staff and numerous volunteers to develop the financial and human resources needed to support families through behavior management, nutrition education, crisis intervention, education, advocacy, guardianship, and medical intervention.
Representative Responsibilities & Duties
Membership, Engagement, and Fundraising
In conjunction with others, conduct activities that facilitate the recruitment and retention of, and strengthen relationships with, association members.
Develop and execute strategies that develop the most effective and mutually rewarding role of volunteers in support of PWSA (USA)’s mission.
Support the activities of state and regional chapters and work to reinforce positive relationships between chapters and the national PWSA (USA) organization.
Grow the number of peer-to-peer, chapter, and grass-roots fundraisers and work to ensure their success.
Have working knowledge of CIVI CRM software and understand how it can be utilized as a multi-faceted tool and resource for the organization’s efforts.
Play a key role in improving the size and quality of the main database of the organization.
Support the overall member/volunteer/donor relations program and its activities.
Assist as needed in various larger national appeal fundraising campaigns.
Develop written and visual content for the organization’s newsletter, website, press releases, and other outreach materials as needed.
Support social media campaigns by creating posts that tell the organization’s story, generate interest in and engagement with PWSA (USA) and its chapters, and ultimately generate revenue.
Work with other staff, volunteers, and community members to solicit testimonials and human-interest stories.
Qualifications & Skills
Qualified candidates should possess the following skills:
Excellent verbal and written communication skills.
Experience working with CRM platforms, preferably Civi CRM.
The ability to work well with volunteers, community stakeholders, and other interested parties.
Strong problem solving, organizational, and time management skills with excellent attention to detail.
Bachelor’s degree with three to five or more years of experience working with nonprofit organizations, membership development, fundraising, and communications.
Interested candidates can apply by emailing resumes to email@example.com or mailing their resume to: